Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Thursday, April 4, 2019

Your Rose Colored Glasses Ain't Helpin' Me

It's funny when you are in need how people react to you. 

Some people act like they want to help by asking you 21 questions and then decide you didn't answer them correctly. How did my disability fail to meet your help requirements? 

Some people act like you are having the time of  your life on disability. Near death experiences on a weekly basis, hallicuinations on a daily basis, and money on a monthly basis is how much fun again? 

Some people accuse you of not being ill... Well, you look fine. I saw you walk to your front door. You just need to take a shower and get some exercise... Yeah, that exercise almost ended me two Sundays ago when I tried to do yard work to save money. Are we supposed to be judging a book by its cover? 

Some people believe you qualify for all sort of government handouts and assistance. No, actually I do not qualify for any resources I have paid into over the years. No food stamps. No long term care. No home assistance. No medical (my doctor told me to see a naturopath; those doctors are not covered by Medicare). No lawn help. No grocery assistance. No churches help. No meals on wheels or other help because of my food and chemical allergies; once i enumerate them, I get hung up on. No driving assistance because I cannot be around smokers or fragrances; the religious organization wanted a letter from my doctor to verify my illness.

There comes a time when a person just gets fed up being called a liar. 

I went on a Facebook group that is supposed to help people, but you have to have a working phone with a camera and cell service. I haven't had cell service in quite awhile because I have been too sick to travel. In order to get help with food, I had to take a picture of my refrigerator with a note I would write with the date. Say what? So all those photos I see are staged? There is no way in hell that is proof of anything but that you have an expensive cellular phone and service.  

My digital cameras sit unused because I haven't been able to afford batteries. My flashlight is not doing so well either. I don't trust it to go into a dark room anymore. I have one working light bulb on a stick lamp I put around the back of the house to see at night. 

So if I borrowed a camera, then I will be accused of having enough money for a fancy phone and service like I was on the Kettle Fire Bone Broth post a few months back when I asked them for some coupons and any programs they might have for disabled people like me. I was reamed by this woman (not associated with the company). 

I have also been accused of being "entitled" to the social programs I have paid for over the years on Twitter. Somehow I do not deserve somneone's time and effort. What has happened to our world? America has turned into the rose colored glasses squad of infinite denial. 

If you complain that the reality you live is different from the one people associate with, you are ungrateful, entitled, bitter, and have "attitude." For telling the truth of my situation? Wowzers. 

I was also told that because I live in Arizona, I qualify for food stamps like it is automatic for a housebound person such as myself. That is so untrue. I was informed by the same Facebook group that $100 was too high for me to receive any grocery help for the month. Food stamps for one adult in Arizona is $200 a month. So I was expected to live off less than $15 a week for some fantasy. 

I had already said to delete my post once I was told there were no resources for me there, yet some of the membership kept goading me to turn in a fake picture. I cried and sobbed most of the night and this morning over how people are so disconnected from reality that they refused to hear what I was telling them: I and my friends have tried to get me services; I am refused because I cannot travel,  talk on the phone, or win phone lotteries (for utility help). 

Take off the glasses... these programs are for able bodied people! Disabled people can only qualify if they cater to the able bodied programs' requirements. Isn't that a form of discrimination? Doesn't the ADA require companies to give a reasonable accommodation? Only if you have a good lawyer.

I also heard: nothing you said has anything to do with us. Really? Then why are you so adamant in proving me a liar? No consistent help for over 12 years. I am not a liar. And, your refusal to listen to me for help just proved my point to me all over again.

...But you can buy used clothing and laundry machines... with a collapsed immune system for which I cannot be around Febreeze, toxic laundry products, or bleaches? Right. Here is the real list: I can use only one kind of dish washing liquid, hard soap, shampoo, and only mineral based, unscented laundry/dishwasher tabs. That is it. 

Stick a fork in me, I'm done. 

I don't fit within a neat set of perimeters so therefore I am dismissed as unworthy for the time and effort, but doesn't that say more about the state of your soul than it does about the state of my reality? 

I challenge anyone to live the way I have to for six months. You won't last. My family didn't. My friends didn't. Being the girl in the bubble is more restrictive than you may romanticize it is.

So the next time you are terribly ill from the flu that you cannot think, have patience, work, drive, walk to the bathroom, cook yourself a meal, get your mail, or even breathe out your nose, remember, you are still having a better day than I have had in fifteen years.

Compassion is not something that should have to be taught. Yes, certain people like to take advantage, but when you meet someone who is truly in need... your natural instincts should kick in. Unless you are still wearing those silly glasses of condescending piety. 

You should probably take those off now.

Have a great and wonderful day.

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Saturday, September 10, 2016

The Confidence Game

On a social media site, I was contacted for a grant. 

I had been in the educational realm long enough that I know what a scholarship, a grant, and a scam is. The play: I would receive $150,000 for a $600 case file and delivery fee. I had to laugh at that crap. 

I am disabled. I barely have enough money for me, why would I want to gamble my security for someone else's duplicity? 

So if you are discovered by someone for a grant, well, make sure you get your money for nothing. I don't pay to play, I don't send money. I do not give out account numbers. If you are real, then you really will help out someone like me. 

No strings attached. 

I am tired of the confidence game. Or, should I say: gain? 

Have a great and wonderful day!



Monday, January 5, 2015

Mean People Make the Best Stories

I have a difficult life.

Disabled because of a terrible illness, that is pretty difficult, but every where I turn someone wants to take advantage of it. The world is sad. People are mean. 

That is how society has turned these last several decades. I take mean people and I see character potential. I can mesh several of these meanies together and create a truly horrible bad guy. Of course, you need a hero or heroine to block their evil intentions. That is how storytelling can be.

You can take the good and the bad of life and create something wonderful. 

It is not easy being green, I mean: me! Ha, ha, ha. Even though I face challenges every which way but loose, I can keep my sense of humor. In the end, the mean people will never have a good life. 

And, I intend to have a fantastic one!

Have a great and wonderful day!!!

Sunday, January 4, 2015

Writing Resolutions

Finishing up.... that is my 2015. 

My Resolution for this year to get some things done. Some writing things. Some art things. 

Anything.

With an disabling illness, everything is tentative. I can have energy one day to do some task and then the rest of the week be unable to get out of bed because I used up all my energy on that previous day. 

Right now, I am recovering yet again from something my body is deciding to go through.

These days I relax and build up enough in my energy bank to do some tasks on another day. 

So as the days are getting longer, warmth returns and so will my imitative... well, that is the hope. What is your hope?

Have a great and wonderful day!

Tuesday, August 26, 2014

Down for the Count

Serious illness is unpredictable.

I guess it's back to writing! The cats don't care; they're asleep all over. Some on the bed. Some of the dresser... Some are missing.

What a great life a house cat has.

Maybe, I should start writing about them!

Have a great and wonderful day.

Monday, February 17, 2014

Just Laughing at Myself

It could be worse, I tell myself.

Then I look at the world around me and think: nah, this situation is totally out of control.

It's difficult to sit back and do nothing. Since I have a disability that precludes me in participating in life in general, I have to discover how to change the world but still keep my sense of humor. 

It's difficult.

I'm glad I have my other blogs. One I get to be the objective observer. The other I get to be as humorous, sarcastic, and brash as I want to be. I come back here to see the world through the glasses of a temperate personality.

All are aspects of myself. Although, I do love to be humorous, it's my style. I enjoy making people laugh as well as see a different perspective. 

Today, I want everyone to find humor in serious situations they find themselves in. if you can lift your spirits and the energy around you, then you can begin to make the changes in your life that you want to see. 

Higher vibrations lead us out of our problems. 

So have a great and humorous day. I think I'm going to put on my Lewis Black and Jeff Dunham DVDs so I too can see the forest through the trees.

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